Research doesn’t happen in isolation. Communities are often deeply interested in research findings — especially when those findings connect to their health, identities, or lived experiences.

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Details

Objective

Reflect on which communities may be impacted by or interested in your work and how you will share your findings (when you have them).

Also, consider your own relationship to the research.

Possible Outputs

A list of communities who may be interested in your findings
Documentation of your analytical choices for use in a methods section or analysis plan
A statement on how your design choices are fit for purpose for your question and communities

When to Use

Most helpful with these phases of research:

Planning
Analysis
Dissemination
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Exercise Preview

Each CHIRON exercise follows the same structure:

Read one or two (light) readings

Apply discussion questions to a real or hypothetical research project

Use a worksheet to reflect on how this exercise applies to your work, and note key takeaways

Reminder

This is intended for conversations about biorepository enabled research — research that relies on the storage and sharing of biological samples and/or data. You may still find it useful in other contexts.

Step 1.

Read

📖 Read as a group.

Note: web versions include links to additional content.

Read the following readings as a group. You might take turns reading aloud or spend a few minutes reading quietly.

These readings will give you important context for the discussion.
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The Importance of Context in Biorepository Research

How to reduce the possibility of harm in repository-enabled research by building context into each step

This reading was featured in a previous exercise. If you’ve read it before, we recommend skimming it to refresh your memory.

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Worksheet: Writing a Positionality Statement for Big Data Research

Reflecting on the perspective you bring to your repository-enabled research


Step 2.

Discuss

💬 Discuss a real or imaginary project

Use the prompts below to guide your group’s conversation.
You can focus on a real research project or make one up for this exercise.

If you are an oversight committee member, consider how you might use or adapt these questions in your review process—for example, by including them in application materials for researchers.

Step 3.

Reflect

✍️ Document your takeaways

Note on versions:

Google doc – best for copying and filling out digitally
PDF – best for printing

Take a few minutes to reflect on this exercise using the worksheet below. Choose the version that best matches your role — or share one worksheet as a group. Jot down any insights, questions, or takeaways.

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Researchers:
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Ethics Committees:
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Data Access Committees:

Next Steps

You’ve completed this exercise. Great work! 🎉

Where to go from here

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