CHIRON Project Archive
Explore the CHIRON Project
The CHIRON Discussion Kit was created as part of a three-year research project funded by the Robert Wood Johnson Foundation and hosted by Sage Bionetworks.
This page houses links to the outputs of this project.
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The CHIRON Discussion Kit
The final version of the CHIRON toolkit, redesigned as a set of small-group discussion exercises. This version was shaped by pilot feedback and community co-analysis.
The CHIRON Toolkit – Version 1
The original version of the toolkit, developed following community engagement studios. This version presented CHIRON content as form-based tools for researchers to complete, ideally as part of research review by oversight committees. Version 1 served as the basis for pilot testing.
CHIRON Blog
A behind-the-scenes blog hosted on PubPub, sharing reflections and updates from the CHIRON research team throughout the project’s development.
Video Series
A short, illustrated video series (about 15 minutes total) originally created to prepare community members for community engagement studios. Through a fictional case study, the videos highlight real-world dilemmas in biorepository research.
Journal Article – Translational Research and Communities
A brief article detailing the foundational motivation and rationale behind the CHIRON project.
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Journal Article – Participatory Research Approach
A methods paper detailing how the CHIRON project used participatory research strategies—like sustained engagement with the same community members over time—to guide toolkit development.
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Journal Article – CHIRON Findings
A research article reporting the findings of the CHIRON project.